Finished. ** Trig SUI ***

For and about self harmers / people with other issues

Re: Finished. ** Trig SUI ***

Postby sally » Thu May 23, 2013 1:21 pm

Hello Ruth,

how are you doing? How is the pain?
Have you managed to go out again? A change of scene must be a relief, even if it is challenging pain wise.

I'm still praying for you,
Sally
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Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Thu May 23, 2013 3:03 pm

Hi!

I was out on Tuesday, briefly, but by the time we finished I was completely exhausted and looked really ill. It's so hard. I'm trying to find things to do that are quiet and don't need concentration. I'm going to buy a new colouring book and I'm going to have a look and see if there's any decent kids toys that are cheap and don't require any thinking.

I'm really hoping for surgery. That's all I can see as being helpful. Living in constant pain is so tiring and the pain is beginning to keep me awake at night, so it's not good.

I'm due to go away for the weekend with my youth group. I'm hoping so much that I can go, but it all depends on what my neurologist says next Wednesday.

Thank you for your replies, they really do mean a lot!

Ruth x
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
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Re: Finished. ** Trig SUI ***

Postby Hash » Thu May 23, 2013 8:22 pm

Darling, I know your seeing the neurologist for your sight on wednesday but are you seeing the Neurologist for a proper appointment too and if so when?.

Hash
Hash
 
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Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Fri May 24, 2013 1:28 am

The neuro will do most of the eye checks apart from the visual field test, so will be able to talk to him then. He'll have a set of questions to ask me and I'll answer them I'm more depth than he'll want. I have a feeling an LP might be advised on Wednesday, but I hope not.

I hope my neurosurgery appt comes through quickly too!!
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby Hash » Sat May 25, 2013 8:05 pm

okay as said via text I will put you on the Mulberry Prayerline's list and specifically ask for prayer that your appts come through quick.

Hash
Hash
 
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Joined: Sun Nov 18, 2007 10:29 pm

Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Sat May 25, 2013 9:45 pm

Thanks!

Tonight my parents are out in Edinburgh at posh relatives for dinner. They said I could go, but I didn't really fancy it. So tonight I ordered pizza and ice cream and had that, then I've done my nails and put my washing on and I'm now going for a bath to cool down cause it's been very warm up here today!

I'm struggling through my days.

Ruth x
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby Keziah » Mon May 27, 2013 7:22 pm

Hi - hope that appointment goes really well for you. Sounds wise not to travel and have to go out, so hope you able to continue resting. Did you manage church?
Keziah
 
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Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Tue May 28, 2013 6:52 pm

Yes I managed church.

I've been really poorly since Sunday. Yesterday saw me have a heart rate of 130. I could feel it beating in my chest and it was clearly visible too. It's slowed down a bit, bit is now settled at 120ish. Still fast, but not as obvious!

Hoping tomorrow is helpful.

Can't stand looking at the screen, so will go now, but update tomorrow.

Ruth x
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby Keziah » Tue May 28, 2013 7:18 pm

Gosh that is so fast. hope it is not sign of an infection. x
Keziah
 
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Re: Finished. ** Trig SUI ***

Postby sally » Wed May 29, 2013 3:38 pm

Hi Ruth,

sorry you are feeling so unwell. Your heart rate that fast must have been quite alarming.
When is your next doctors appointment? Could you try phoning to hurry up a date for neurosurgery?

Praying some help can be sorted for your recovery very soon,
Sally
sally
 
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Location: LONDON

Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Wed May 29, 2013 4:29 pm

Hey!

So today was ok. Apart from fainting in the waiting room. That wasn't good!! My eye sight is deteriorating so I am waiting to go back into hospital when they phone to get an LP and treatment. I am going to a neuro ward, so that's a plus!! Unfortunately, it means I can't get to my youth group weekend away this weekend. How ever I do value my eyesight!!

Will keep you updated!!

Ruth x
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby asc » Wed May 29, 2013 8:12 pm

I'm so sorry and pray that your neuro admission will come through soon.

Thank you for your support for me.
Ann www.annspoetry.weebly.com / www. annssmallpets.weebly.com
"My grace is sufficient for you, for my power is made perfect in weakness" 2 Corinthians 12v9
"You are God's masterpiece." Ephesians 2v10 God doesn't make junk!
asc
 
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Joined: Sun Apr 27, 2008 1:36 pm
Location: Tunbridge Wells, Kent

Re: Finished. ** Trig SUI ***

Postby Hash » Thu May 30, 2013 2:45 pm

I'm really glad they are putting you in a neuro ward I just hope and pray a bed becomes available soon as time is ticking with your sight and I am worried you won't get your dight back afterwards.

Hash
Hash
 
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Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Thu May 30, 2013 9:07 pm

Managed to contact the ward I'm goin to around 1pm today, they said they had no idea I was due in and to phone the clinic. Phones my consultants secretary who had no idea either, however she spoke to the consultant and phoned back to they'll contact in the next day or so. So hopefully tomorrow!! I am struggling through the days in agony. It's crazy. I never knew pain could be this bad!!

Will let you know what happens! :)
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby Beautifully_Broken » Tue Jun 04, 2013 1:05 pm

Hey!

Sorry for my lack of update. I got the phone call to come into hospital on Saturday morning at 9.30am. Since Saturday, I have had a lumbar puncture every day, and I'm looking at another one today because my eyes are unable to move as much as they would like. They said to me yesterday that they aren't really bothered about my headache. As much as it's agony for me, they are very concerned about my eyesight and the damage to my eyes. I don't know what the plan ahead is, though if my pressure is above 30 they will be getting the neurosurgeons involved. Because of the constant LP's my back is very sore. It is black and blue and very swollen, so the thought of getting another one is depressing!

Anyway, just thought I'd update and let you know what's happening. I have my laptop in hospital with me and they have wifi. So yay! I am in a lovely ward. The staff are lovely and I'm in a 3 bed room with 2 other young girls, so it's good. We keep each other going and have a laugh. It's a bit like being in boarding school or something because although we are ill, we aren't sick. The other 2 girls though are not in any pain, so sometimes their constant chatting gets a bit annoying, but nothing too bad!

Will let you know what happens soon!

Ruth x
With Jesus I can take it,
With Him I know I can stand,
No matter what may come my way,
My life is in your hands.

It's lonely when you don't even know yourself...
Beautifully_Broken
 
Posts: 1066
Joined: Sat Oct 11, 2008 3:24 pm
Location: Scotland

Re: Finished. ** Trig SUI ***

Postby sally » Tue Jun 04, 2013 2:08 pm

Hello Ruth,

thank you for managing to post an update - that must be hard with your strange eyesight changes and the headaches.
I'm so sorry you are still suffering so much and it sounds quite critical. I'm sorry too that your back is so sore from the daily LPs but I am pleased the doctors aren't just leaving you at home in agony. I pray they will involve the neurosurgeons soon and they can find some way to reduce the pressure and bring some relief at last.

I'm glad you are on a nice ward with kind nurses and a small bay with only 2 others, young and friendly. It's lovely to know that you can have a laugh with them inspite of the pain.

Sally
sally
 
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Re: Finished. ** Trig SUI ***

Postby Hash » Tue Jun 04, 2013 9:50 pm

We prayed for you in housegroup tonight,

Hang in there!

Hash
Hash
 
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Re: Finished. ** Trig SUI ***

Postby asc » Wed Jun 05, 2013 9:49 am

I'm sorry things are so hard - I can't image so many lumbar punctures and pray that a shunt, or something similar, will be arranged soon.

Praying for you.

Love
Ann
Ann www.annspoetry.weebly.com / www. annssmallpets.weebly.com
"My grace is sufficient for you, for my power is made perfect in weakness" 2 Corinthians 12v9
"You are God's masterpiece." Ephesians 2v10 God doesn't make junk!
asc
 
Posts: 2581
Joined: Sun Apr 27, 2008 1:36 pm
Location: Tunbridge Wells, Kent

Re: Finished. ** Trig SUI ***

Postby Keziah » Sat Jun 08, 2013 7:38 pm

Sorry to hear you still so unwell but sounds like hospital a good place to be to make sure things do not get worse.

How are things now? x
Keziah
 
Posts: 2886
Joined: Wed Jun 29, 2005 9:42 am

Re: Finished. ** Trig SUI ***

Postby Hash » Sun Jun 09, 2013 10:10 pm

BB is out of hospital but she's too unwell to post.
Hash
 
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